Select Page

CJD Awareness

Home Forums Infexion Connexion CJD Awareness

 | Click to Receive Email Notifications of Posts
Viewing 1 post (of 1 total)
  • Author
    Posts
  • #78998
    joe.bendall@BIGPOND.COM Organization: Infection Control Review Subject: CJD Awareness MIME-Version: 1.0 Content-Type: multipart/alternative; boundary=”—-=_NextPart_001_0257_01D7DA12.C4FF6F60″ Message-ID:
    Participant

    Author:
    joe.bendall@BIGPOND.COM Organization: Infection Control Review Subject: CJD Awareness MIME-Version: 1.0 Content-Type: multipart/alternative; boundary=”—-=_NextPart_001_0257_01D7DA12.C4FF6F60″ Message-ID:

    Email:
    025501d7d9b6$918cad70$b4a60850$@bigpond.com

    Organisation:

    State:

    Good morning everyone

    CJD International Awareness Day is the 12 November. We need to remember that
    although CJD is a rare disease, its impacts on family and friends of people
    who die from CJD are overwhelming and devastating. The CJDSGN have put
    together a memorial wall to remember some of those people who have died from
    this disease. https://www.cjdsupport.org.au/memorial-wall-2021/

    A comprehensive review of the CJD Support Group Network (CJDSGN) and
    Australian National CJD Registry (ANCJDR) was undertaken by
    PricewaterhouseCoopers (PwC) earlier this year on behalf of the Commonwealth
    Department of Health (Health).

    The final result of that review was posted on Healths website:
    CJD Review
    Final Report (pdf link)

    Check the Australian CJD Registry for information on testing, surveillance
    and expert advice contacts if required.
    https://florey.edu.au/science-research/scientific-services-facilities/austra
    lian-national-cjd-registry

    Creutzfeldt-Jakob disease (CJD)

    For simplicity, CJD is the term used in the Australian National CJD
    Infection Control Guidelines
    to describe all forms of Transmissible Spongiform
    Encephalopathies (TSE) or prion diseases except variant CJD (vCJD) which is
    an acquired form of prion disease that is quite different to CJD. Variant
    CJD, also commonly known as Mad Cow Disease is related to the consumption
    of BSE contaminated beef, and to date, we have had no reported cases of vCJD
    in Australia.

    CJD occurs at about the same frequency in all countries; 1 to 2 cases per
    million individuals per year. In Australia, we average about 35 cases of CJD
    a year.

    CJD and other prion diseases includes:

    * Sporadic CJD (sCJD)

    * Genetic or inherited forms of CJD and other prion diseases

    1. Familial CJD (fCJD)

    2. Gerstmann-Strussler Scheinker Syndrome (GSS)

    3. Fatal Familial Insomnia (FFI)

    * Acquired forms of CJD and other prion diseases

    1. Health Care associated or medically acquired (iatrogenic) CJD (iCJD)

    2. Kuru

    3. Variant CJD (vCJD)

    There is currently no effective treatment or cure for CJD but research
    continues on many drugs. CJD is still only confirmed by autopsy although a
    test performed on cerebrospinal fluid to detect a protein marker can help
    diagnose CJD in people who already show clinical symptoms of the disease.

    Thank you

    Joe

    INFECTION CONTROL REVIEW PTY LTD

    Joe-Anne Bendall Consulting

    ABN 98630512284

    Joe.bendall@bigpond.com

    MESSAGES POSTED TO THIS LIST ARE SOLELY THE OPINION OF THE AUTHOR, AND DO NOT REPRESENT THE OPINION OF ACIPC.

    The use of trade/product/commercial brand names through the list is discouraged by ACIPC. If you wish to discuss specific reference to products or services by brand or commercial names, please do this outside the list.

    Archive of all messages are available at http://aicalist.org.au/archives – registration and login required.

    Replies to this message will be directed back to the list. To create a new message send an email to acipclist@acipc.org.au

    To send a message to the list administrator send an email to admin@acipc.org.au

    You can unsubscribe manually from this list by sending ‘signoff acipclist’ (without the quotes) to listserv@aicalist.org.au

Viewing 1 post (of 1 total)
  • The forum ‘Infexion Connexion’ is closed to new topics and replies.