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Good morning everyone
CJD International Awareness Day is the 12 November. We need to remember that
although CJD is a rare disease, its impacts on family and friends of people
who die from CJD are overwhelming and devastating. The CJDSGN have put
together a memorial wall to remember some of those people who have died from
this disease. https://www.cjdsupport.org.au/memorial-wall-2021/A comprehensive review of the CJD Support Group Network (CJDSGN) and
Australian National CJD Registry (ANCJDR) was undertaken by
PricewaterhouseCoopers (PwC) earlier this year on behalf of the Commonwealth
Department of Health (Health).The final result of that review was posted on Healths website:
CJD Review
Final Report (pdf link)Check the Australian CJD Registry for information on testing, surveillance
and expert advice contacts if required.
https://florey.edu.au/science-research/scientific-services-facilities/austra
lian-national-cjd-registryCreutzfeldt-Jakob disease (CJD)
For simplicity, CJD is the term used in the Australian National CJD
Infection Control Guidelines
to describe all forms of Transmissible Spongiform
Encephalopathies (TSE) or prion diseases except variant CJD (vCJD) which is
an acquired form of prion disease that is quite different to CJD. Variant
CJD, also commonly known as Mad Cow Disease is related to the consumption
of BSE contaminated beef, and to date, we have had no reported cases of vCJD
in Australia.CJD occurs at about the same frequency in all countries; 1 to 2 cases per
million individuals per year. In Australia, we average about 35 cases of CJD
a year.CJD and other prion diseases includes:
* Sporadic CJD (sCJD)
* Genetic or inherited forms of CJD and other prion diseases
1. Familial CJD (fCJD)
2. Gerstmann-Strussler Scheinker Syndrome (GSS)
3. Fatal Familial Insomnia (FFI)
* Acquired forms of CJD and other prion diseases
1. Health Care associated or medically acquired (iatrogenic) CJD (iCJD)
2. Kuru
3. Variant CJD (vCJD)
There is currently no effective treatment or cure for CJD but research
continues on many drugs. CJD is still only confirmed by autopsy although a
test performed on cerebrospinal fluid to detect a protein marker can help
diagnose CJD in people who already show clinical symptoms of the disease.Thank you
Joe
INFECTION CONTROL REVIEW PTY LTD
Joe-Anne Bendall Consulting
ABN 98630512284
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